Amyotrophic Lateral Sclerosis,9781932603064

Amyotrophic Lateral Sclerosis

by
ISBN13: 9781932603064
ISBN10: 1932603069
Format: Trade Paper
Pub. Date: 2004-11-10
Publisher(s): Demos Health
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Summary

ALS is not a curable disease but it is a treatable one. Although theiagnosis of ALS can initially be devastating, the vast majority of peopleiscover new courage from within to battle this disease. The information inhis book will prove useful to people with ALS and their families, both inanaging the disease and living with it.

Author Biography

Dr. Robert G. Miller is Director of the Forbes Norris MDA/ALS Research Center at the California Pacific Medical Center in San Francisco and Clinical Professor of Neurology in the Department of Neurology at the University of California, San Francisco Dr. Deborah Gelinas is Clinical Director of the Forbes Norris MDA/ALS Research Center Patricia O'Connor, RN is the nurse case manager and coordinator of the Multidisciplinary Clinic at the Forbes Norris MDA/ALS Research Center in San Francisco, CA

Table of Contents

Foreword v
Lewis P. Rowland, MD
Acknowledgments vi
Preface vii
Authors ix
Section 1:Introduction
1. What is Amyotrophic Lateral Sclerosis?
3(12)
2. The Diagnosis of ALS
15(18)
3. Clinical Trials and Finding New Drugs for ALS
33(34)
Section 2: Managing the Symptom of ALS
4. A Multidisciplinary Approach to Care
67(14)
5. Quality of Life and Psychosocial Issues
81(10)
6. Treating the Symptoms of ALS
91(12)
7. Nutrition and Swallowing
103(16)
Alycia Chu, MS, RD
8. Speech, Communication, and Computer Access
119(18)
Amy Roman, MS, CCC-SLP
9. Staying Mobile
137(12)
10. Breathing and Sleeping
149(8)
11. Thinking and Behavioral Changes
157(10)
Susan Woolley Levine, PhD
12. Palliative Care
167(12)
Section 3: Resources
13. Finding a Cure and Improving Living with ALS: How the ALS Association Helps Patients and Families
179(18)
Mary Lyon
14. The Muscular Dystrophy Association (MDA), ALS Division
197(14)
Ronald J. Schenkenberger
15. Negotiating the Insurance Maze
211
With Dorothy E. Northrop, MSW, ACSW
Section 4: Appendix
Resources 231(4)
Index 235

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